Statement on General Data Protection Regulations
As a university we use personal information to conduct research to improve health, care and services in addition to non-health related research that may use people’s data. As a publicly-funded organisation, we have to ensure that it is in the public interest, or for our legitimate purposes when we use personally-identifiable information from people who have agreed to take part in research. This means that when you agree to take part in a research study, we will use your data in the ways needed to conduct and analyse the research study. Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.
For non-health related research we will conduct scientific research in compliance with the law and the recommendations and guidance published by the UK Information Commissioners Office. Broadly speaking this will follow similar rules to health and care research but does not meet the definition of public interest. In this case we will be holding and using your data for what is known as Legitimate Purposes.
When you agree to take part in a non-health research study, the information you provide may be shared with researchers running other research studies in this organisation and in other organisations. These organisations may be universities or companies involved in similar research in this country or abroad.
Health and care research should serve the public interest, which means that we have to demonstrate that our research serves the interests of society as a whole. We do this by following the UK Policy Framework for Health and Social Care Research.
When you agree to take part in a health research study, the information about your health and care may be provided to researchers running other research studies in this organisation and in other organisations. These organisations may be universities, NHS organisations or companies involved in health and care research in this country or abroad. Your information will only be used by organisations and researchers to conduct research in accordance with the UK Policy Framework for Health and Social Care Research.
Information we share will not identify you and will not be combined with other information in a way that could identify you. The information will only be used for the purpose of research, and cannot be used to contact you or to affect your care. It will not be used to make decisions about future services available to you, such as insurance.
If you wish to raise a complaint on how we have handled your personal data, you can contact our Data Protection Officer who will investigate the matter. If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful you can complain to the Information Commissioner’s Office (ICO).
Our Data Protection Officer is Mr Robert J Scott and you can contact them at firstname.lastname@example.org