For parents and carers
The National Neonatal Research Database.
Information collected by regular staff on the neonatal unit is used to create a National Neonatal Research Database
(NNRD). The information within the NNRD is called the Neonatal Data Set. This information is used to support research, surveys, quality improvement programmes and management reports aiming to improve newborn care and health outcomes. Any use of this information for research requires approval from a National Research Ethics Committee. No
details that might identify you or your baby would be revealed. The NNRD is created and held at the Neonatal Data
Analysis Unit (NDAU) where research projects are carried out. These include linkage studies with other sets of data such
as hospital admission statistics (HES) and mortality data sourced from the public body NHS Digital. Data from 2006-2007
onwards is held on the database.
If parents do not want their child's information to be used, they may tell the neonatal unit staff where their baby is being cared for. The staff will make sure their child's information is not sent to the Neonatal Data Analysis Unit and not included in the National Neonatal Research Database. This will not affect the babys care in any way.
Please find below The National Neonatal Research Database Privacy Notice, the Neonatal Data Analysis Unit's poster "Why your baby's data are important" and futher GDPR ifnormation on the National Neonatal ResGeneral earch Database.
The National Neonatal Research Database further information on the General Data Protection Regulations (GDPR).