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Public involvement training sessions for researchers and people you involve

In collaboration with the Imperial Clinical Trials Unit (ICTU), PERC has developed the following series of public involvement in research training modules (suitable for both Imperial researchers and patients/members of the public), which are co-delivered with a member of the public.

Please note: These sessions have been designed as a series and recommend that people attend as many as possible in numerical order. Places will be allocated on a first-come-first-served basis, but priority will be given to researchers and members of the public affiliated to the NIHR Imperial Biomedical Research Centre (BRC), Patient Experience Research Centre (PERC) or Imperial Clinical Trials Unit (ICTU).

If you have any other enquiries or need more information about these training sessions, please contact PERC at ppi@imperial.ac.uk.

 

Public involvement training dates

Session 1: Public Involvement - The Basics

Description: 
An introduction for those who have little or no experience in Public Involvement (PPI). Includes definitions, the benefits of public involvement, how to identify people to involve and some practicalities of involving people in research. 

Next sessions:

  • Tuesday 3 September 2019 - 10am to 12.30pm - Room G64, Ground Floor, School of Medicine, Norfolk Place, London, W2 1PG - please sign up here
  • Wednesday 23 October 2019 - 2pm to 4.30pm - Room G64, Ground Floor, School of Medicine, Norfolk Place, London, W2 1PG - please sign up here.
  • Tuesday 5 November 2019 - 2pm to 4.30pm - Rooms G65A and B,  Ground Floor, School of Medicine, Norfolk Place, London, W2 1PG - please sign up here.
 

 

For Imperial (or associated staff):

You will be required to provide evidence that your line manager has approved your attendance. Should you not attend without providing at least one week's prior notice, your department will be charged for your place. This does not apply to members of the public who are involved in research.

 

 

 

 

 

Session 2: Roles & Responsibilities and Public Involvement (PPI) Facilitation

Description:
Aimed at those with a basic to intermediate knowledge of Public Involvement (PPI). Covers the roles/responsibilities of the researcher and the people involved, including how to manage, communicate and document these. Guidance on facilitating a Public Involvement activity is also provided.

Next sessions:

  • Tuesday 15 October 2019, 2pm to 4.30pm, Room G64, Ground Floor, School of Medicine, Norfolk Place, London, W2 1PG. Please sign up here.
  • Wednesday 4 December 2019, 2pm to 4.30pm, Rooms G65A and B, Ground Floor, School of Medicine, Norfolk Place, London, W2 1PG. Please sign up here.

 

For Imperial (or associated staff):

You will be required to provide evidence that your line manager has approved your attendance. Should you not attend without providing at least one week's prior notice, your department will be charged for your place. This does not apply to members of the public who are involved in research.

 

 

Session 3: Public Involvement (PPI) Early in the Research Cycle

Description: 
Aimed at those with a basic knowledge of Public Involvement (PPI) and who have completed 'Session 1: Public Involvement - The Basics'. Covers Public Involvement in the first three stages of the research cycle: Identifying and Prioritising, Designing and Managing and Funding and Commissioning, together with ways to involve people.

Next sessions:

  • Wednesday 20 November 2019 - 2pm to 4.30pm - Room G64, School of Medicine, Norfolk Place, London, W2 1PG. Please sign up here.

For Imperial (or associated staff):

You will be required to provide evidence that your line manager has approved your attendance. Should you not attend without providing at least one week's prior notice, your department will be charged for your place. This does not apply to members of the public who are involved in research.

 

 

Session 4: Public Involvement (PPI) for Participant Information Documents and Recruitment

 

Description: 
Aimed at those who have completed 'Session 1: Public Involvement - The Basics' and ideally 'Session 2: Public Involvement Early in the Research Cycle'. Covers Public Involvement (PPI) in the review of documentation for research participants and recruitment of participants for research.

Next sessions:

  • Monday 21 October 2019, 2pm to 4.30pm, The Invention Rooms, 68 Wood Lane, London, W12 7TA. Please sign up here.
  • Monday 25 November 2019, 10am to 12.30pm, The Invention Rooms, 68 Wood Lane, London, W12 7TA. Please sign up here.

 

For Imperial (or associated staff):

You will be required to provide evidence that your line manager has approved your attendance. Should you not attend without providing at least one week's prior notice, your department will be charged for your place. This does not apply to members of the public who are involved in research.

Session 5: Completing the Research Cycle with Public Involvement (PPI)

Description: 

Aimed at those who have already completed 'Session 1: Public Involvement - The Basics' and ideally 'Session 2: Public Involvement Early in the Research Cycle'. Covers Public Involvement in the following stages of the research cycle: Undertaking and Analysing, Disseminating, Implementing and Evaluating.

Next sessions:

  • Monday 4 November 2019 - 10am to 12.30pm -  The Invention Rooms, 68 Wood Lane, London W12 7TA. Please sign up here.
  • Tuesday 10 December 2019 - 2pm to 4.30pm - Rooms G65A and B, Ground Floor, School of Medicine, Norfolk Place, London, W2 1PG. Please sign up here.
For Imperial (or associated staff):

You will be required to provide evidence that your line manager has approved your attendance. Should you not attend without providing at least one week's prior notice, your department will be charged for your place. This does not apply to members of the public who are involved in research.

 


CRISH

PERC has been co-delivering the EIT (European Institute of innovation & Technology) HealthCo-CReating Innovation Solutions for Health (CRISH) course during 2017 and 2018 in London, Barcelona and Grenoble. The course aimed to bring together health sector members, including patients, to support the co-creation of innovative health solutions. 

Attendees gain knowledge and skills on how to co-create projects using a variety of methods, such as Design Thinking, Responsible Research and Innovation (RRI), and Public Involvement. For guidance on the course content, here's an example two-day agenda developed for the 2018 course.‌ The current partners of the CRISH course together with a number of new partners aim to develop a 'Train-the-Trainer' CRISH course in 2019. Details of when future courses will be held is currently unknown.

Email Maria Piggin (m.piggin@imperial.ac.uk) from the PERC team with any questions.


Other training resources

Other training resources

Other websites for Public Involvement support

  • NIHR INVOLVE – Etablished in 1996, this government funded programme is considered the central portal for public involvement expertise, insight and research. It's part of, and funded by, the National Institute for Health Research (NIHR), to support active public involvement in NHS, public health and social care research. Visit their site for the latest insight on PPI in research

  • The Health Research Authority (HRA) – In its role to protect and promote the interests of patients and the public in health, the HRA now manages the research and ethics approval process for the NHS in England  for a quick itroduction, watch this HRA Approval animation. Public involvement is therefore central to their work and the approval process, and they have provided useful guidance and templates specific to this on their website

  • EUPATI  The European Patients' Academy (EUPATI) is a pan-European project established as a collaborative partnership between the pharmaceutical industry, acadeia, not-for-profit, and patient organisations. They focus on education and training to increase the capacity and capability of patients to understand and contribute to medical research and development

  • Public Involvement Standards Development – A UK-wide partnership project that aims to improve the quality and consistency of public involvement in research through the development and introduction of national standards. A consultation was carried out in 2017, and from April 2018 to April 2019, work will be underway to pilot how the developed standards can be put into practice

  • Imperial College London – Public involvement is central to a number of departments at Imperial. Many of these have their own public involvement sites, with additional information tailored to the research field:
    1. Patient Safety Translational Research Centre
    2. Imperial Clinical Trials Unit
    3. NIHR Health Protection Research Unit in Modelling Methodology
    4. NIHR Health Protection Research Unit in Respiratory Infections

    In addition, Imperial are dedicated to 
     , which looks more generally at how we share the wonder and importance of what we do here at Imperial with the public - including schools, patients and local communities.

  • Voice – Voice is an organisation that aims to capture the publics' vast experience, ideas, opinions and expectations about the research, innovations and policies affecting their lives. They support members of the public, of all ages and backgrounds, to become actively involved in contributing their insights and visions. Through this platform researchers are able to engage in discussions with members, as well as post opportunities for involvement in their research

Other Public Involvement training and resources for researchers and members of the public

  • Public reviewing with the National Institute for Health Research (NIHR) - online course made up of 3 modules developed by the NIHR for:
      • Public contributors who have been asked to provide feedback on a research document or sit on committee that assess several research documents.
      • Public contributors who are new to reviewing (research) and those who want to know more.
      • Researchers, research managers and funders who want to understand what makes good Patient and Public Involvement and the public perspective.
       
  • European Patient Ambassador Programme course - The course is made up of eight modules, which will help you gain the information and skills you need to become a successful patient representative. You do not have to do the modules in the order they are presented. The individual modules can be done in any order you feel best suits your needs and interests.
  • The Collaboration for Leadership in Applied Health Research and Care (North West London) (CLAHRC NWL) offers eLearning modules to aide quality improvements. It’s primarily aimed at lay people, however one module entitled ‘Patient and Public Engagement/Involvement’ may be of interest. [N.B. email registration needed]

  • The Cancer Research UK Patient Involvement Toolkit is a free access resource for researchers to learn about, plan and carry out public involvement during their research.

  • The EUPATI Toolbox on Medicines R&D – The European Patients' Academy for Therapeutic Innovation (EUPATI) has devised a toolbox (including training aids, template PowerPoint slides and cases studies) for training patients and patient advocates about the medicine research and development process. Material from the EUPATI toolbox can shared and adapted for free due to its Creative Commons Licence, CC BY-NC-SA 4.0.

    Search the Toolbox by keyword or by category. There are a number of mini-course starter kits such as the one on protocol design within Clinical Development and Trials. Alternatively, you can just search 'mini-course starter kits' in the keyword seach function. As a note, some aspects are more geared towards commercial research, but many of concepts and processes are also common to publicly-funded research.

  • The ECRAN Project - The European Communication on Research Awareness Needs website provides many tools and resources that can be used to introduce lay members to medical research. For example, here's a short animation introducing clinical research

Related online training

  • Public reviewing with the National Institute for Health Research (NIHR) - online course made up of 3 modules developed by the NIHR for:
      • Public contributors who have been asked to provide feedback on a research document or sit on committee that assess several research documents.
      • Public contributors who are new to reviewing (research) and those who want to know more.
      • Researchers, research managers and funders who want to understand what makes good Public Involvement and the public perspective.
       
  • As a member of Imperial, you have unlimited access to lynda.com, which offers a wide variety of courses. Consider ones on Marketing Communication or Social Media, which are both very applicable to public involvement.

  • The short MOOC (massive open online course) 'Citizen Involvement Matters' on Voice is designed to help academics, students and researchers to identify and focus on citizens' needs and priorities for healthy ageing. It's been funded by Voice, EIT Health and Wellcome Trust.

  • FutureLearn provides free online learning to all, which often includes courses hugely relevant to research, public engagement and involvement and the wider field of health and well-being. You can sign-up to get notifications, or keep checking the site for the latest courses.
  • Improving Healthcare Through Clinical Research - appropriate for members of the public - Through case studies and interviews, this online course covers the process of clinical research, its challenges and benefits, and how members of a research team, academics and participants all contribute to the process of discovery.