Imperial College London

Dr Anne-Marie Russell

Faculty of MedicineDepartment of Surgery & Cancer

Honorary Clinical Research Fellow



a.russell Website




G08Emmanuel Kaye BuildingRoyal Brompton Campus





Current Positions:

1.  Research Associate | Department of Genomic & Environmental Medicine 

2. Post-doctoral Senior Clinical Research Fellow | St Mary's Hospital | ICHCT

3. Clinical Research Fellow (hon) | Royal Brompton Hospital

ResearchGate Profile:

Anne-Marie Russell is a post-doctoral researcher with interests in mixed methodological approaches incorporating qualitative research in Interstitial Lung Diseases (ILD) and chronic pulmonary conditions. Her work focuses on health metrics: the development and validation of an Idiopathic Pulmonary Fibrosis (IPF) specific Patient Reported Experience Measure (PREM) and Patient Reported Outcome Measure (PRoM) and testing the reliability of the Patient Activation Measure (PAM) in an ILD population. Anne-Marie's work is underpinned by patient centered approaches and patent collaboration.

The 12 item IPF-PROM is undergoing further validation in UK; Eire; US and South American; it has been translated into Danish German Spanish and Portuguese. Digital versions are incorporated into the Care Information exchange portal at Imperial College Healthcare Trust and the Patient MPower App.

Please contact me directly to access the IPF-PROM 

Room G08 | NHLI | Emmanuel Kaye Building | Manresa Road | London SW3           



Pettersson H, Alexanderson H, Poole JL, et al., 2021, Exercise as a multi-modal disease-modifying medicine in systemic sclerosis: An introduction by The Global Fellowship on Rehabilitation and Exercise in Systemic Sclerosis (G-FoRSS), Best Practice & Research Clinical Rheumatology, Vol:35, ISSN:1521-6942, Pages:101695-101695

Saketkoo LA, Frech T, Varjú C, et al., 2021, A comprehensive framework for navigating patient care in systemic sclerosis: A global response to the need for improving the practice of diagnostic and preventive strategies in SSc, Best Practice & Research Clinical Rheumatology, Vol:35, ISSN:1521-6942, Pages:101707-101707

Aronson K, Danoff SK, Russell A-M, et al., 2021, Patient-centered Outcomes Research in Interstitial Lung Disease An Official American Thoracic Society Research Statement: Executive Summary, American Journal of Respiratory and Critical Care Medicine, Vol:204, ISSN:1073-449X, Pages:126-141

Saketkoo LA, Russell A-M, Jensen K, et al., 2021, Health-Related Quality of Life (HRQoL) in Sarcoidosis: Diagnosis, Management, and Health Outcomes, Diagnostics, Vol:11

Richards DA, Sugg HV, Cockcroft E, et al., 2021, COVID-NURSE: evaluation of a fundamental nursing care protocol compared with care as usual on experience of care for noninvasively ventilated patients in hospital with the SARS-CoV-2 virus-protocol for a cluster randomised controlled trial., Bmj Open, Vol:11

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