Imperial College London
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ProfessorEdwinaBrown

Faculty of Medicine, Department of Immunology and Inflammation

Professor of Renal Medicine
 
 
 
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Contact

 

+44 (0)20 3311 7590e.a.brown

 
 
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Location

 

Renal OfficesHammersmith HouseHammersmith Campus

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Summary

 

Publications

Citation

BibTex format

@article{Manera:2020:10.1053/j.ajkd.2019.09.017,
author = {Manera, KE and Johnson, DW and Craig, JC and Shen, JI and Gutman, T and Cho, Y and Wang, AY-M and Brown, EA and Brunier, G and Dong, J and Dunning, T and Mehrotra, R and Naicker, S and Pecoits-Filho, R and Perl, J and Wilkie, M and Tong, A and Levin, A and Liew, A and Cueto, Manzano A and Abu, Alfa A and Neu, A and Baumgartf, A and Bernier-Jean, A and Kelly, A and Figueiredo, A and Matus, A and Viecelli, A and Ju, A and Saxena, A and Sharma, A and Nadeau-Fredette, A-C and Teixeira-Pinto, A and Mendelson, A and Kelly, A and Goh, BL and Sautenet, B and Manns, B and Hemmelgarn, B and Robinson, B and Hanson, C and Cheung, C and Guha, C and Logeman, C and Szeto, C-C and Rutherford, C and Schwartz, D and Sumpton, D and Johnson, D and Wheeler, D and Brown, E and O'Lone, E and Au, E and Goffin, E and Finkelstein, F and Abraham, G and Brunier, G and Germino, G and Hurst, H and Kawanishi, H and Htay, H and Yap, HK and Teitelbaum, I and Perl, J and Chen, J and Shen, J and Dong, J and Neumann, J a},
doi = {10.1053/j.ajkd.2019.09.017},
journal = {American Journal of Kidney Diseases},
pages = {404--412},
title = {Establishing a core outcome set for peritoneal dialysis: report of the SONG-PD (Standardized Outcomes in Nephrology-Peritoneal Dialysis) consensus workshop},
url = {http://dx.doi.org/10.1053/j.ajkd.2019.09.017},
volume = {75},
year = {2020}
}
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RIS format (EndNote, RefMan)

TY  - JOUR
AB  - Outcomes reported in randomized controlled trials in peritoneal dialysis (PD) are diverse, are measured inconsistently, and may not be important to patients, families, and clinicians. The Standardized Outcomes in Nephrology–Peritoneal Dialysis (SONG-PD) initiative aims to establish a core outcome set for trials in PD based on the shared priorities of all stakeholders. We convened an international SONG-PD stakeholder consensus workshop in May 2018 in Vancouver, Canada. Nineteen patients/caregivers and 51 health professionals attended. Participants discussed core outcome domains and implementation in trials in PD. Four themes relating to the formation of core outcome domains were identified: life participation as a main goal of PD, impact of fatigue, empowerment for preparation and planning, and separation of contributing factors from core factors. Considerations for implementation were identified: standardizing patient-reported outcomes, requiring a validated and feasible measure, simplicity of binary outcomes, responsiveness to interventions, and using positive terminology. All stakeholders supported inclusion of PD-related infection, cardiovascular disease, mortality, technique survival, and life participation as the core outcome domains for PD.
AU  - Manera,KE
AU  - Johnson,DW
AU  - Craig,JC
AU  - Shen,JI
AU  - Gutman,T
AU  - Cho,Y
AU  - Wang,AY-M
AU  - Brown,EA
AU  - Brunier,G
AU  - Dong,J
AU  - Dunning,T
AU  - Mehrotra,R
AU  - Naicker,S
AU  - Pecoits-Filho,R
AU  - Perl,J
AU  - Wilkie,M
AU  - Tong,A
AU  - Levin,A
AU  - Liew,A
AU  - Cueto,Manzano A
AU  - Abu,Alfa A
AU  - Neu,A
AU  - Baumgartf,A
AU  - Bernier-Jean,A
AU  - Kelly,A
AU  - Figueiredo,A
AU  - Matus,A
AU  - Viecelli,A
AU  - Ju,A
AU  - Saxena,A
AU  - Sharma,A
AU  - Nadeau-Fredette,A-C
AU  - Teixeira-Pinto,A
AU  - Mendelson,A
AU  - Kelly,A
AU  - Goh,BL
AU  - Sautenet,B
AU  - Manns,B
AU  - Hemmelgarn,B
AU  - Robinson,B
AU  - Hanson,C
AU  - Cheung,C
AU  - Guha,C
AU  - Logeman,C
AU  - Szeto,C-C
AU  - Rutherford,C
AU  - Schwartz,D
AU  - Sumpton,D
AU  - Johnson,D
AU  - Wheeler,D
AU  - Brown,E
AU  - O'Lone,E
AU  - Au,E
AU  - Goffin,E
AU  - Finkelstein,F
AU  - Abraham,G
AU  - Brunier,G
AU  - Germino,G
AU  - Hurst,H
AU  - Kawanishi,H
AU  - Htay,H
AU  - Yap,HK
AU  - Teitelbaum,I
AU  - Perl,J
AU  - Chen,J
AU  - Shen,J
AU  - Dong,J
AU  - Neumann,J
AU  - Bargman,J
AU  - Morelle,J
AU  - Craig,J
AU  - Kilonzo,KG
AU  - Yeates,K
AU  - Maner,K
AU  - Azukaitis,K
AU  - Van,KL
AU  - Dunn,L
AU  - Krishnan,M
AU  - Lambie,M
AU  - Howell,M
AU  - Schreiber,M
AU  - Wilkie,M
AU  - Oliver,M
AU  - Sanabria,MR
AU  - Nataatmadja,M
AU  - Lichodziejewska-Niemierko,M
AU  - Verdin,N
AU  - Mann,N
AU  - Boudville,N
AU  - Evangelidis,N
AU  - Scholes-Robertson,N
AU  - Blake,P
AU  - Nourse,P
AU  - Tugwell,P
AU  - Li,PK-T
AU  - Mehrotra,R
AU  - McGee,R
AU  - Quinn,R
AU  - Crowe,S
AU  - Anumudu,S
AU  - Bernays,S
AU  - Naicker,S
AU  - Wilson,S
AU  - Nessim,S
AU  - Teo,S
AU  - Carter,SA
AU  - Davies,S
AU  - Sweety,SA
AU  - Gutman,T
AU  - Toffelmire,T
AU  - Jassal,V
AU  - Jha,V
AU  - da,Silva VC
AU  - Van,Biesen W
AU  - Winkelmayer,W
AU  - Ito,Y
AU  - Cho,Y
AU  - Kim,Y-L
AU  - Butt,Z
DO  - 10.1053/j.ajkd.2019.09.017
EP  - 412
PY  - 2020///
SN  - 0272-6386
SP  - 404
TI  - Establishing a core outcome set for peritoneal dialysis: report of the SONG-PD (Standardized Outcomes in Nephrology-Peritoneal Dialysis) consensus workshop
T2  - American Journal of Kidney Diseases
UR  - http://dx.doi.org/10.1053/j.ajkd.2019.09.017
UR  - http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000514843600013&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=1ba7043ffcc86c417c072aa74d649202
UR  - https://www.sciencedirect.com/science/article/pii/S0272638619311163?via%3Dihub
VL  - 75
ER  -
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