Imperial College London
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ProfessorEdwinaBrown

Faculty of Medicine, Department of Immunology and Inflammation

Professor of Renal Medicine
 
 
 
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Contact

 

+44 (0)20 3311 7590e.a.brown

 
 
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Location

 

Renal OfficesHammersmith HouseHammersmith Campus

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Summary

 

Publications

Citation

BibTex format

@article{Wilkinson:2017:ckj/sfw151,
author = {Wilkinson, E and Randhawa, G and Brown, E and Da, Silva Gane M and Stoves, J and Warwick, G and Mir, T and Magee, R and Sharman, S and Farrington, K},
doi = {ckj/sfw151},
journal = {Clinical Kidney Journal},
pages = {419--424},
title = {Time, timing, talking and training: Findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients},
url = {http://dx.doi.org/10.1093/ckj/sfw151},
volume = {10},
year = {2017}
}
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RIS format (EndNote, RefMan)

TY  - JOUR
AB  - Background. With an ageing and increasingly diverse population at risk from rising levels of obesity, diabetes and cardiovascular disease, including kidney complications, there is a need to provide quality care at all stages in the care pathway including at the end of life and to all patients. Aim. This study purposively explored South Asian patients' experiences of kidney end of life care to understand how services can be delivered in a way that meets diverse patient needs. Methods. Within an action research design 14 focus groups (45 care providers) of kidney care providers discussed the recruitment and analysis of individual interviews with 16 South Asian kidney patients (eight men, eight women). Emergent themes from the focus groups were analysed thematically. The research took place at four UK centres providing kidney care to diverse populations: West London, Luton, Leicester and Bradford. Results. Key themes related to time and the timing of discussions about end of life care and the factors that place limitations on patients and providers in talking about end of life care. Lack of time and confidence of nurses in areas of kidney care, individual attitudes and workforce composition influence whether and how patients have access to end of life care through kidney services. Conclusion. Training, teamwork and time to discuss overarching issues (including timing and communication about end of life) with colleagues could support service providers to facilitate access and delivery of end of life care to this group of patients.
AU  - Wilkinson,E
AU  - Randhawa,G
AU  - Brown,E
AU  - Da,Silva Gane M
AU  - Stoves,J
AU  - Warwick,G
AU  - Mir,T
AU  - Magee,R
AU  - Sharman,S
AU  - Farrington,K
DO  - ckj/sfw151
EP  - 424
PY  - 2017///
SN  - 2048-8505
SP  - 419
TI  - Time, timing, talking and training: Findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients
T2  - Clinical Kidney Journal
UR  - http://dx.doi.org/10.1093/ckj/sfw151
VL  - 10
ER  -
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