Imperial College London
Alternate

DrSubarnaChakravorty

Faculty of Medicine, Department of Immunology and Inflammation

Honorary Clinical Senior Lecturer
 
 
 
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Contact

 

+44 (0)20 3299 3773s.chakravorty

 
 
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Location

 

Medical SchoolSt Mary's Campus

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Summary

 

Publications

Citation

BibTex format

@article{Chakravorty:2018:10.1136/archdischild-2018-314955,
author = {Chakravorty, S and Tallett, A and Sathyamoorthy, G and Witwicki, C and Hay, H and Ogundipe, A and Mkandawire, C and Ojeer, P and Whitaker, A and Thompson, J and Warner, JO},
doi = {10.1136/archdischild-2018-314955},
journal = {Archives of Disease in Childhood},
pages = {1104--1109},
title = {Patient reported experience measure in Sickle Cell disease},
url = {http://dx.doi.org/10.1136/archdischild-2018-314955},
volume = {103},
year = {2018}
}
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RIS format (EndNote, RefMan)

TY  - JOUR
AB  - Objectives:To develop Patient Reported Experience Measure surveys for patients with Sickle CellDisease (SCD) to understand their healthcare and lived experience in the UK and fortheir use in future to inform healthcare service development.Design:Picker methodology was used as follows:1. Qualitative scoping by focus group discussions2. Questionnaire development through stakeholder consultations3. Construct validation of questionnaires through cognitive testing4. Further assessment of construct validity by a nationwide pilot surveySetting:Patients with SCD and their carers were eligible. Focus group discussions took place innon-hospital settings, arranged out-of-hours. Cognitive testing took place in specialistSickle Cell clinics. The pilot survey was available to UK participants only and wasadministered through web-based questionnaires, face-to face completion and in sicklecell community events.Participants:Thirty-three patients and carers took part in the focus groups, 21 participants undertookcognitive testing and 722 respondents completed the pilot survey.Results:Findings highlighted a widespread prevalence of poor knowledge about SCD amonghealthcare providers and the public. Poorer experience of care was present in the emergency setting compared to planned care, of which lack of timely provision of painrelief was of concern. Adolescents and young people reported significantly poorerexperience of care in several domains compared to children or adults.Conclusions:The new surveys functioned well, with good evidence of validity, and were accessible tothe SCD patient population, supporting their future use in assessing patient experienceto inform service delivery and improvements in care quality.
AU  - Chakravorty,S
AU  - Tallett,A
AU  - Sathyamoorthy,G
AU  - Witwicki,C
AU  - Hay,H
AU  - Ogundipe,A
AU  - Mkandawire,C
AU  - Ojeer,P
AU  - Whitaker,A
AU  - Thompson,J
AU  - Warner,JO
DO  - 10.1136/archdischild-2018-314955
EP  - 1109
PY  - 2018///
SN  - 1468-2044
SP  - 1104
TI  - Patient reported experience measure in Sickle Cell disease
T2  - Archives of Disease in Childhood
UR  - http://dx.doi.org/10.1136/archdischild-2018-314955
UR  - https://adc.bmj.com/content/103/12/1104
UR  - http://hdl.handle.net/10044/1/59853
VL  - 103
ER  -
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