Imperial College London


Faculty of MedicineSchool of Public Health

Honorary Lecturer



+44 (0)20 7594 2789susan.hodgson Website




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BibTex format

author = {Hodgson, S and Beale, L and Parslow, RC and Feltbower, RG and Jarup, L},
doi = {10.1111/j.1399-5448.2011.00815.x},
journal = {Pediatric Diabetes},
pages = {235--243},
title = {Creating a national register of childhood type 1 diabetes using routinely collected hospital data},
url = {},
volume = {13},
year = {2012}

RIS format (EndNote, RefMan)

AB - Introduction: There is no national register of childhood type 1 diabetes mellitus for England. Our aim was to assess the feasibility of using routine hospital admissions data as a surrogate for a childhood diabetes register across England, and to create a geographically referenced childhood diabetes dataset for use in epidemiologic studies and health service research.Methods: Hospital Episodes Statistics data for England from April 1992 to March 2006 referring to a type 1 diabetes diagnosis in 0–14 yr olds were cleaned to approximate an incident dataset. The cleaned data were validated against regional population-based register data, available for Yorkshire and the area of the former Oxford Regional Health Authority.Results: There were 32 665 unique cases of type 1 and type unknown diabetes over the study period. The hospital-derived data improved in quality over time (91% concordance with regional register data over the period 2000–2006 vs. 52% concordance over the period 1992–1999), and data quality was better for younger (0–9 yr) (86.5% concordance with regional register data) than older cases (10–14 yr). Overall incidence was 24.99 (95% confidence interval 24.71–25.26) per 100 000. Basic trends in age distribution, seasonality of onset, and incidence matched well with previously reported findings.Conclusion: We were able to create a surrogate register of childhood diabetes based on national hospital admissions data, containing approximately 2300 cases/yr, and geo-coded to a high resolution. For younger cases (0–9 yr) and more recent years (from 2000) these data will be a useful resource for epidemiological studies exploring the determinants of childhood diabetes.
AU - Hodgson,S
AU - Beale,L
AU - Parslow,RC
AU - Feltbower,RG
AU - Jarup,L
DO - 10.1111/j.1399-5448.2011.00815.x
EP - 243
PY - 2012///
SN - 1399-5448
SP - 235
TI - Creating a national register of childhood type 1 diabetes using routinely collected hospital data
T2 - Pediatric Diabetes
UR -
UR -
VL - 13
ER -