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author = {Aufegger, L and Khanh, Ha B and Colin, B and Ara, D},
doi = {10.1186/s12887-020-02361-w},
journal = {BMC Pediatrics},
title = {Developing a paediatric virtual hospital information system with children, parents, and healthcare staff: A UX design study},
url = {},
volume = {20},
year = {2020}

RIS format (EndNote, RefMan)

AB - BackgroundThe hospital patient pathway for having treatment procedures can be daunting for younger patients and their family members, especially when they are about to undergo a complex intervention. Opportunities to mentally prepare young patients for their hospital treatments, e.g. for surgical procedures, include tools such as therapeutic clowns, medical dolls, or books and board games. However, while promising in reducing pre-operative anxiety and negative behaviours, they may be resource intensive, costly, and not always readily available. In this study, we co-designed a digital hospital information system with children, parents and clinicians, in order to prepare children undergoing medical treatment.MethodThe study took place in the UK and consisted of two parts: In part 1, we purposively sampled 37 participants (n=22 parents, and n=15 clinicians) to understand perceptions and concerns of an hospital information platform specifically design for and addressed to children. In part 2, 14 children and 11 parents attended an audio and video recorded co-design workshop alongside a graphic designer and the research team to have their ideas explored and reflected on for the design of such information technology. Consequently, we used collected data to conduct thematic analysis and narrative synthesis.ResultsFindings from the survey were categorised into four themes: (1) the prospect of a hospital information system (parents’ inputs); (2) content-specific information needed for the information system (parents’ and clinicians’ inputs); (3) using the virtual information system to connect young patients and parents (parents’ inputs); and (4) how to use the virtual hospital information system from a clinician’s perspective (clinicians’ inputs). In contrast, the workshop highlighted points in times children were most distressed/relaxed, and derived the ideal hospital visit in both their and their parents’ perspectives.ConclusionsTh
AU - Aufegger,L
AU - Khanh,Ha B
AU - Colin,B
AU - Ara,D
DO - 10.1186/s12887-020-02361-w
PY - 2020///
SN - 1471-2431
TI - Developing a paediatric virtual hospital information system with children, parents, and healthcare staff: A UX design study
T2 - BMC Pediatrics
UR -
UR -
VL - 20
ER -