Opting-out of your baby’s data being included in the National Neonatal Research Database
National data opt-out
The national data opt-out is a service that allows patients to opt out of their information being used for research and planning.
Patients can view or change their national data opt-out choice at any time by using the online service at www.nhs.uk/your-nhs-data-matters or by clicking on "Your Health" in the NHS App, and selecting "Choose if data from your health records is shared for research and planning".
If this is done NHS Digital will inform Clevermed who will ensure the opt out data is not transferred to the National Neonatal Research Database.
England, Scotland, and Wales
A parent can either log a call or email to the data hosting company, Clevermed Limited, themselves or request a member of staff on the Neonatal Unit to do so on their behalf. This can be done by email firstname.lastname@example.org or phone +44 (0)131 221 7700.
Clevermed will ensure data is not transferred to the National Neonatal Research Database.