Imperial College London
Portrait Picture

Prof Caroline Alexander

Faculty of Medicine, Department of Surgery & Cancer

Professor of Practice (Musculoskeletal Physiotherapy)
 
 
 
//

Contact

 

caroline.alexander

 
 
//

Location

 

Department of PhysiotherapyCharing Cross HospitalCharing Cross Campus

//

Summary

 

Publications

Citation

BibTex format

@article{Clunie:2023:10.1111/1460-6984.12794,
author = {Clunie, G and Belsi, A and Roe, J and Sandhu, G and McGregor, A and Alexander, C},
doi = {10.1111/1460-6984.12794},
journal = {International Journal of Language and Communication Disorders},
pages = {376--389},
title = {“Is there something wrong with your voice?” A qualitative study of the voice concerns of people with laryngotracheal stenosis},
url = {http://dx.doi.org/10.1111/1460-6984.12794},
volume = {58},
year = {2023}
}
Download

RIS format (EndNote, RefMan)

TY  - JOUR
AB  - BackgroundAcquired laryngotracheal stenosis (LTS) is a rare condition that causes breathlessness and dyspnoea. Patients have reconstructive airway surgery to improve their breathing difficulties, but both LTS and the surgery can cause voice difficulties. The existing evidence base for management of the voice difficulties for adults with LTS focuses on symptoms. There is limited information to provide clinical guidance for speech and language therapists (SLTs), and limited understanding of the impact of voice changes on adults with LTS. AimTo investigate the lived experience of adults with laryngotracheal stenosis (LTS), who have had reconstructive surgery; here focussing on voice concerns with the aim of guiding clinical care for SLTs.Methods & ProceduresA phenomenological, qualitative study design was used. Focus groups and semi-structured interviews were completed with adults living with LTS who had had reconstructive surgery. Audio-recordings were transcribed and inductive thematic analysis was used by the research team to identify themes and sub-themes. Outcomes & ResultsA total of 24 participants (5 focus groups and 2 interviews) took part in the study before thematic saturation was identified in analysis. Three main themes were identified specific to the experience of living with LTS: the Medical, Physical and Emotional journey. All participants referenced voice difficulties as they related to each of these overall themes. Sub-themes directly related to voice included: experience of surgery, information provision, staff expertise/complacency, symptoms, symptom management, identity, support networks, impact on life and living with a chronic condition. Conclusions & ImplicationsIn this qualitative study participants have described the integral part voice difficulties play in their lived experience of LTS and reconstructive surgery. This is considered in the context of their clinical care and the need for individualised management and information prov
AU  - Clunie,G
AU  - Belsi,A
AU  - Roe,J
AU  - Sandhu,G
AU  - McGregor,A
AU  - Alexander,C
DO  - 10.1111/1460-6984.12794
EP  - 389
PY  - 2023///
SN  - 1368-2822
SP  - 376
TI  - “Is there something wrong with your voice?” A qualitative study of the voice concerns of people with laryngotracheal stenosis
T2  - International Journal of Language and Communication Disorders
UR  - http://dx.doi.org/10.1111/1460-6984.12794
UR  - https://onlinelibrary.wiley.com/doi/10.1111/1460-6984.12794
UR  - http://hdl.handle.net/10044/1/99641
VL  - 58
ER  -
Download