Imperial College London
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ProfessorEdwinaBrown

Faculty of Medicine, Department of Immunology and Inflammation

Professor of Renal Medicine
 
 
 
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Contact

 

+44 (0)20 3311 7590e.a.brown

 
 
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Location

 

Renal OfficesHammersmith HouseHammersmith Campus

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Summary

 

Publications

Citation

BibTex format

@article{Beckwith:2022:10.1016/j.ekir.2022.08.023,
author = {Beckwith, H and Thomas, N and Adwaney, A and Appelbe, M and Gaffney, H and Hill, P and Moabi, D and Prout, V and Salisbury, E and Webster, P and Tomlinson, J and Brown, E},
doi = {10.1016/j.ekir.2022.08.023},
journal = {Kidney International Reports},
pages = {2421--2430},
title = {Gender differences in experiences and expectations of haemodialysis in a frail and seriously unwell patient population},
url = {http://dx.doi.org/10.1016/j.ekir.2022.08.023},
volume = {7},
year = {2022}
}
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RIS format (EndNote, RefMan)

TY  - JOUR
AB  - IntroductionSurprisingly few studies have explored the experiences of seriously unwell people with kidney disease on haemodialysis therapy: we conducted a mixed-methods study to investigate gender differences in illness experience, symptom burden, treatment considerations or expectations in this cohort.MethodsSeriously unwell people on haemodialysis (1-year mortality risk of >20%) at three hospital-based units were invited to take part in a structured interview or to complete the same questions independently via a questionnaire. 54 people took part (36 males, 18 females); data analysis was undertaken using a thematic approach.Results‘Desire to keep living’ is the most important and basic thought process when starting dialysis. Fear also predominates influencing risk assessment and decision-making. Once fear is managed, there are physical, social, practical and emotional issues to rationalise, but choice only seems possible if shared decision-making is part of the consultation.Gender differences were seen in perceived hopes and expectations of treatment. Males were more likely to prioritise achievement of physical goals, with females prioritising a wish to feel well. Both genders reported significantly higher symptom scores than their healthcare provider perceived, however this difference was more marked in females. Dialysis regret existed in >50% of participants and 6/54 (11%) stated that they would have chosen no dialysis at all. Females were more likely to report feeling depressed (P=0.001).ConclusionDifferent genders approach treatment decisions and prioritise treatment expectations differently. Recognising this will allow personalised care plans to be developed and improve the experiences of seriously unwell people with kidney disease.
AU  - Beckwith,H
AU  - Thomas,N
AU  - Adwaney,A
AU  - Appelbe,M
AU  - Gaffney,H
AU  - Hill,P
AU  - Moabi,D
AU  - Prout,V
AU  - Salisbury,E
AU  - Webster,P
AU  - Tomlinson,J
AU  - Brown,E
DO  - 10.1016/j.ekir.2022.08.023
EP  - 2430
PY  - 2022///
SN  - 2468-0249
SP  - 2421
TI  - Gender differences in experiences and expectations of haemodialysis in a frail and seriously unwell patient population
T2  - Kidney International Reports
UR  - http://dx.doi.org/10.1016/j.ekir.2022.08.023
UR  - https://www.sciencedirect.com/science/article/pii/S2468024922017247?via%3Dihub
UR  - http://hdl.handle.net/10044/1/99430
VL  - 7
ER  -
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