Imperial College London
Dr Kofi A Anie MBE

Dr Kofi A Anie MBE

Faculty of Medicine, Faculty of Medicine Centre

 
 
 
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Contact

 

+44 (0)20 8453 2060k.anie Website

 
 
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Location

 

Central Middlesex HospitalCentral Middlesex Hospital

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Summary

 

Publications

Citation

BibTex format

@article{Anie:2016:10.1007/s12687-016-0267-3,
author = {Anie, KA and Treadwell, MJ and Grant, AM and Dennis-Antwi, JA and Asafo, MK and Lamptey, ME and Ojodu, J and Yusuf, C and Otaigbe, A and Ohene-Frempong, K},
doi = {10.1007/s12687-016-0267-3},
journal = {Journal of Community Genetics},
pages = {195--202},
title = {Community Engagement to Inform the Development of a Sickle Cell Counselor Training and Certification Program in Ghana},
url = {http://dx.doi.org/10.1007/s12687-016-0267-3},
volume = {7},
year = {2016}
}
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RIS format (EndNote, RefMan)

TY  - JOUR
AB  - Sickle cell disease (SCD) and sickle cell trait (SCT) are highly prevalent in Africa. Despite public health implications, there is limited understanding of community issues for implementing newborn screening and appropriate family counseling. We conducted a three-day workshop in Kumasi, Ghana, with community leaders as lay program development advisors to assist the development and implementation of a Sickle Cell Counselor Training and Certification Program. We employed qualitative methods to understand cultural, religious and psychosocial dimensions of SCD and SCT, including the advisors’ attitudes and beliefs in relation to developing a culturally sensitive approach to family education and counseling that is maximally suited to diverse communities in Ghana. We collated advisors’ discussions and observations in order to understand community issues, potential challenges, and guide strategies for advocacy in SCD family education and counseling. Results from the workshop revealed that community leaders representing diverse communities in Ghana were engaged constructively in discussions about developing a culturally sensitive counselor training program. Key findings included the importance of improved knowledge about SCD among the public and youth in particular, the value of stakeholders such as elders, religious and traditional leaders, and government expectations of reduced SCD births. We submitted a report to the Ministry of Health in Ghana with recommendations for the next steps in developing a national sickle cell counselor training program. We named the program ‘Genetic Education and Counseling for Sickle Cell Conditions in Ghana’ (GENECIS-Ghana). The first GENECIS-Ghana Training and Certification Program Workshop was conducted from June 8th to 12th, 2015.
AU  - Anie,KA
AU  - Treadwell,MJ
AU  - Grant,AM
AU  - Dennis-Antwi,JA
AU  - Asafo,MK
AU  - Lamptey,ME
AU  - Ojodu,J
AU  - Yusuf,C
AU  - Otaigbe,A
AU  - Ohene-Frempong,K
DO  - 10.1007/s12687-016-0267-3
EP  - 202
PY  - 2016///
SN  - 1868-310X
SP  - 195
TI  - Community Engagement to Inform the Development of a Sickle Cell Counselor Training and Certification Program in Ghana
T2  - Journal of Community Genetics
UR  - http://dx.doi.org/10.1007/s12687-016-0267-3
UR  - http://hdl.handle.net/10044/1/30901
VL  - 7
ER  -
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