Imperial College London
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Professor Konstantinos Dimopoulos

Faculty of Medicine, National Heart & Lung Institute

Professor of Practice (Adult Congenital Heart Disease)
 
 
 
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Contact

 

+44 (0)20 7352 8121 ext 82771k.dimopoulos02

 
 
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Location

 

Chelsea WingRoyal Brompton Campus

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Summary

 

Publications

Citation

BibTex format

@article{Constantine:2021:10.1002/ehf2.13263,
author = {Constantine, A and Condliffe, R and Clift, P and Tulloh, R and Dimopoulos, K},
doi = {10.1002/ehf2.13263},
journal = {ESC Heart Failure},
pages = {1901--1904},
title = {Palliative care in pulmonary hypertension associated with congenital heart disease: systematic review and expert opinion},
url = {http://dx.doi.org/10.1002/ehf2.13263},
volume = {8},
year = {2021}
}
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RIS format (EndNote, RefMan)

TY  - JOUR
AB  - AimsPulmonary arterial hypertension (PAH) is common amongst patients with congenital heart disease (CHD). It is a severe and complex condition that adversely affects quality of life and prognosis. While quality of life questionnaires are routinely used in clinical pulmonary hypertension practice, little is known on how to interpret their results and manage PAHCHD patients with evidence of impaired healthrelated quality of life, especially those with advanced disease and palliative care needs.Methods and resultsWe performed a systematic review of studies concerning palliative care for people with PAHCHD, also reviewing the healthrelated quality of life literature pertaining to these patients. Of 330 papers identified through initial screening, 17 were selected for inclusion. Underutilization of advance care planning and palliative care resources was common. Where palliative care input was sought, this was frequently late in the course of the disease. No studies provided evidencebased clinical criteria for triggering referral to palliative care, a framework for providing tailored care in this patient group, or how to manage the risk of sudden cardiac death and implantable cardioverter defibrillators in advanced PAHCHD. We synthesize this information into eight important areas, including the impact of PAHCHD on quality of life, barriers to and benefits of palliative care involvement, advance care planning discussions, and endoflife care issues in this complex patient group, and provide expert consensus on best practice in this field.ConclusionsThis paper presents the results of a systematic review and expert statements on the preferred palliative care strategy for patients with PAHCHD.
AU  - Constantine,A
AU  - Condliffe,R
AU  - Clift,P
AU  - Tulloh,R
AU  - Dimopoulos,K
DO  - 10.1002/ehf2.13263
EP  - 1904
PY  - 2021///
SN  - 2055-5822
SP  - 1901
TI  - Palliative care in pulmonary hypertension associated with congenital heart disease: systematic review and expert opinion
T2  - ESC Heart Failure
UR  - http://dx.doi.org/10.1002/ehf2.13263
UR  - https://onlinelibrary.wiley.com/doi/10.1002/ehf2.13263
UR  - http://hdl.handle.net/10044/1/87341
VL  - 8
ER  -
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