Imperial College London
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Professor Konstantinos Dimopoulos

Faculty of Medicine, National Heart & Lung Institute

Professor of Practice (Adult Congenital Heart Disease)
 
 
 
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Contact

 

+44 (0)20 7352 8121 ext 82771k.dimopoulos02

 
 
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Location

 

Chelsea WingRoyal Brompton Campus

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Summary

 

Publications

Citation

BibTex format

@article{Dimopoulos:2023:ehjqcco/qcad014,
author = {Dimopoulos, K and Bouchard, M and Cheryl, Chong Z and Castro, Meira V and Pool, D and Lambell, M and Rafiq, I and Kempny, A and Heng, EL and Gatzoulis, M and Haidu, L and Constantine, A},
doi = {ehjqcco/qcad014},
journal = {European Heart Journal - Quality of Care and Clinical Outcomes},
pages = {351--357},
title = {Transition to adult care of young people with congenital heart disease: Impact of a service on knowledge and self-care skills, and correlates of a successful transition},
url = {http://dx.doi.org/10.1093/ehjqcco/qcad014},
volume = {9},
year = {2023}
}
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RIS format (EndNote, RefMan)

TY  - JOUR
AB  - AimsLess than one-third of adolescents with congenital heart disease (CHD) successfully transition to adult care, missing out on education of their cardiac condition, and risking loss to follow-up. We assessed the efficacy of our transition clinic on patient education and empowerment and identified correlates of successful transition.Methods and resultsOverall, 592 patients were seen at least once in our transition service between 2015 and 2022 (age 15.2 ± 1.8 years, 47.5% female). Most adolescents (53%) had moderate CHD, followed by simple (27.9%) and severe (19.1%) CHD. Learning disability (LD) was present in 18.9% and physical disability (PD) in 4.7%. In patients without LD, knowledge of their cardiac condition improved significantly from the first to the second visit (naming their condition: from 20 to 52.3%, P < 0.0001; describing: 14.4–42.7%, P < 0.0001; understanding: 26.1–60.7%, P < 0.0001), and from the second to the third (naming: 67.4%, P = 0.004, describing: 61.4%, P < 0.001, understanding: 71.1%, P = 0.02;). Patients with LD did not improve their disease knowledge over time (all P > 0.05). Treatment adherence and management involvement, self-reported anxiety, and dental care awareness did not change over time. Successful transition (attendance of ≥ 2 clinics) was achieved in 49.3%. Younger age at the first visit, simpler CHD, and absence of PD were associated with successful transition.ConclusionA transition service positively impacts on patient education and empowerment in most CHD adolescents transitioning to adult care. Strategies to promote a tailored support for patients with LD should be sought, and earlier engagement should be encouraged to minimize follow-up losses.
AU  - Dimopoulos,K
AU  - Bouchard,M
AU  - Cheryl,Chong Z
AU  - Castro,Meira V
AU  - Pool,D
AU  - Lambell,M
AU  - Rafiq,I
AU  - Kempny,A
AU  - Heng,EL
AU  - Gatzoulis,M
AU  - Haidu,L
AU  - Constantine,A
DO  - ehjqcco/qcad014
EP  - 357
PY  - 2023///
SN  - 2058-5225
SP  - 351
TI  - Transition to adult care of young people with congenital heart disease: Impact of a service on knowledge and self-care skills, and correlates of a successful transition
T2  - European Heart Journal - Quality of Care and Clinical Outcomes
UR  - http://dx.doi.org/10.1093/ehjqcco/qcad014
UR  - https://academic.oup.com/ehjqcco/advance-article/doi/10.1093/ehjqcco/qcad014/7040565
UR  - http://hdl.handle.net/10044/1/102940
VL  - 9
ER  -
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