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@article{Buttery:2021:10.1136/bmjresp-2021-001075,
author = {Buttery, S and Philip, K and Williams, P and Fallas, A and West, B and Curnella, A and Walker, S and Quint, J and Polkey, M and Hopkinson, N and Philip, K and Buttery, S and Williams, P and Hopkinson, N and Quint, J and Polkey, M},
doi = {10.1136/bmjresp-2021-001075},
journal = {BMJ Open Respiratory Research},
title = {Patient symptoms and experience following COVID-19: results from a UK-wide survey},
url = {http://dx.doi.org/10.1136/bmjresp-2021-001075},
volume = {8},
year = {2021}
}

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TY  - JOUR
AB  - Objectives: To investigate the experience of people who continue to be unwell after acute COVID-19, often referred to as ‘long COVID’, both in terms of their symptoms and their interactions with healthcare.Design: We conducted a mixed-methods analysis of responses to a survey accessed through a UK online post-COVID support and information hub between April and December 2020 about people’s experiences after having acute COVID-19.Participants: 3290 respondents, 78% female 92.1% white ethnicity and median age range 45-54 years; 12.7% had been hospitalised. 494(16.5%) completed the survey between 4 and 8 weeks of the onset of their symptoms, 641(21.4%) between 8 and 12 weeks and 1865(62.1%) >12 weeks after.Results: The ongoing symptoms most frequently reported were; breathing problems (92.1%), fatigue (83.3%), muscle weakness or joint stiffness (50.6%), sleep disturbances (46.2%), problems with mental abilities (45.9%) changes in mood, including anxiety and depression (43.1%) and cough (42.3%). Symptoms did not appear to be related to the severity of the acute illness or to the presence of pre-existing medical conditions.  Analysis of free text responses revealed three main themes (1) Experience of living with COVID-19 – physical and psychological symptoms that fluctuate unpredictably; (2) Interactions with healthcare that were unsatisfactory; (3) Implications for the future – their own condition, society and the healthcare system, and the need for researchConclusion: Consideration of patient perspective and experiences will assist in the planning of services to address problems persisting in people who remain symptomatic after the acute phase of COVID-19.
AU  - Buttery,S
AU  - Philip,K
AU  - Williams,P
AU  - Fallas,A
AU  - West,B
AU  - Curnella,A
AU  - Walker,S
AU  - Quint,J
AU  - Polkey,M
AU  - Hopkinson,N
AU  - Philip,K
AU  - Buttery,S
AU  - Williams,P
AU  - Hopkinson,N
AU  - Quint,J
AU  - Polkey,M
DO  - 10.1136/bmjresp-2021-001075
PY  - 2021///
SN  - 2052-4439
TI  - Patient symptoms and experience following COVID-19: results from a UK-wide survey
T2  - BMJ Open Respiratory Research
UR  - http://dx.doi.org/10.1136/bmjresp-2021-001075
UR  - http://hdl.handle.net/10044/1/97315
VL  - 8
ER  -

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