Imperial College London
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ProfessorNickHopkinson

Faculty of Medicine, National Heart & Lung Institute

Professor of Respiratory Medicine
 
 
 
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Contact

 

n.hopkinson

 
 
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Location

 

Muscle LabSouth BlockRoyal Brompton Campus

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Summary

 

Publications

Citation

BibTex format

@unpublished{Buttery:2021:10.1101/2021.04.15.21255348,
author = {Buttery, S and Philip, KEJ and Williams, P and Fallas, A and West, B and Cumella, A and Cheung, C and Walker, S and Quint, J and Polkey, M and Hopkinson, N},
doi = {10.1101/2021.04.15.21255348},
publisher = {Cold Spring Harbor Laboratory},
title = {Patient symptoms and experience following COVID-19: results from a UK wide survey},
url = {http://dx.doi.org/10.1101/2021.04.15.21255348},
year = {2021}
}
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RIS format (EndNote, RefMan)

TY  - UNPB
AB  - Objectives To investigate the experience of people who continue to be unwell after acute COVID-19, often referred to as ‘long COVID’, both in terms of their symptoms and their interactions with healthcare.Design We conducted a mixed-methods analysis (quantitative and qualitative) of responses to a survey accessed through a UK online post-COVID support and information hub between April 2020 and December 2020 about people’s experiences after having acute COVID-19.Participants Of 3290 respondents, 78% were female, median age range 45-54 years, 92.1% reported white ethnicity; 12.7% had been hospitalised. 494 respondents (16.5%) completed the survey between 4 and 8 weeks of the onset of their symptoms, 641 (21.4%) between 8 and 12 weeks and 1865 (62.1%) more than 12 weeks after.Results The ongoing symptoms most frequently reported were; breathing problems (92.1%), fatigue (83.3%), muscle weakness or joint stiffness (50.6%), sleep disturbances (46.2%), problems with mental abilities (45.9%) changes in mood, including anxiety and depression (43.1%) and cough (42.3%). Symptoms did not appear to be related to the severity of the acute illness or to the presence of pre-existing medical conditions. Analysis of free text responses revealed three main themes (1) Experience of living with COVID-19 – physical and psychological symptoms that fluctuate unpredictably; (2) Interactions with healthcare; (3) Implications for the future – their own condition, society and the healthcare system and the need for researchConclusion People living with persistent problems after the acute phase of COVID-19 report multiple and varying symptoms that are not necessarily associated with initial disease severity or the presence of pre-existing health conditions. Many have substantial unmet needs and experience barriers to accessing healthcare. Consideration of patient perspective and experiences will assist in the planning of services to address this.Ethical approval Et
AU  - Buttery,S
AU  - Philip,KEJ
AU  - Williams,P
AU  - Fallas,A
AU  - West,B
AU  - Cumella,A
AU  - Cheung,C
AU  - Walker,S
AU  - Quint,J
AU  - Polkey,M
AU  - Hopkinson,N
DO  - 10.1101/2021.04.15.21255348
PB  - Cold Spring Harbor Laboratory
PY  - 2021///
TI  - Patient symptoms and experience following COVID-19: results from a UK wide survey
UR  - http://dx.doi.org/10.1101/2021.04.15.21255348
UR  - https://www.medrxiv.org/content/10.1101/2021.04.15.21255348v1
UR  - http://hdl.handle.net/10044/1/91398
ER  -
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