Imperial College London
Alternate

ProfessorSimonGregson

Faculty of Medicine, School of Public Health

Professor in Demography and Behavioural Science
 
 
 
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Contact

 

+44 (0)20 7594 3279s.gregson

 
 
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Location

 

LG27Praed StreetSt Mary's Campus

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Summary

 

Publications

Citation

BibTex format

@article{Skovdal:2019:10.1080/17441692.2019.1571092,
author = {Skovdal, M and Ssekubugu, R and Nyamukapa, C and Seeley, J and Renju, J and Wamoyi, J and Moshabela, M and Ondenge, K and Wringe, A and Gregson, S and Zaba, B},
doi = {10.1080/17441692.2019.1571092},
journal = {Global Public Health},
pages = {1252--1263},
title = {The rebellious man: next-of-kin accounts of the death of a male relative on antiretroviral therapy in sub-Saharan Africa},
url = {http://dx.doi.org/10.1080/17441692.2019.1571092},
volume = {14},
year = {2019}
}
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RIS format (EndNote, RefMan)

TY  - JOUR
AB  - The HIV response is hampered by many obstacles to progression along the HIV care cascade, with men, in particular, experiencing different forms of disruption. One group of men, whose stories remain untold, are those who have succumbed to HIV-related illness. In this paper, we explore how next-of-kin account for the death of a male relative. We conducted 26 qualitative after-death interviews with family members of male PLHIV who had recently died from HIV in health and demographic surveillance sites in Malawi, Tanzania, Kenya, Uganda, Zimbabwe and South Africa. The next-of-kin expressed frustration about the defiance of their male relative to disclose his HIV status and ask for support, and attributed this to shame, fear and a lack of self-acceptance of HIV diagnosis. Next-of-kin painted a picture of their male relative as rebellious. Some claimed that their deceased relative deliberately ignored instructions received by the health worker. Others described their male relatives as unable to maintain caring relationships that would avail day-to-day treatment partners, and give purpose to their lives. Through these accounts, next-of-kin vocalised the perceived rebellious behaviour of these men, and in the process of doing so neutralised their responsibility for the premature death of their relative.
AU  - Skovdal,M
AU  - Ssekubugu,R
AU  - Nyamukapa,C
AU  - Seeley,J
AU  - Renju,J
AU  - Wamoyi,J
AU  - Moshabela,M
AU  - Ondenge,K
AU  - Wringe,A
AU  - Gregson,S
AU  - Zaba,B
DO  - 10.1080/17441692.2019.1571092
EP  - 1263
PY  - 2019///
SN  - 1744-1692
SP  - 1252
TI  - The rebellious man: next-of-kin accounts of the death of a male relative on antiretroviral therapy in sub-Saharan Africa
T2  - Global Public Health
UR  - http://dx.doi.org/10.1080/17441692.2019.1571092
UR  - https://www.ncbi.nlm.nih.gov/pubmed/30689511
UR  - http://hdl.handle.net/10044/1/71484
VL  - 14
ER  -
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