PPI training sessions for researchers and people you involve
In collaboration with the Imperial Clinical Trials Unit (ICTU), PERC has developed the following series of PPI in research training modules (suitable for both Imperial researchers and patients/members of the public), which will be co-delivered with a member of the public:
PPI training dates
Session 1: PPI - The Basics
An introduction for those who have little or no experience in PPI. Includes definitions, the benefits of PPI, how to identify people to involve and some practicalities of involving people in research.
The next session is on Thursday, 27 September 2018 (14:00-16:30) in the Committee Room, St Mary's Campus, School of Medicine, Norfolk Place, London W2 1PG. Please register through Eventbrite.
Session 2: Roles & Responsibilities and PPI Facilitation
Aimed at those with a basic to intermediate knowledge of PPI. Covers the roles/responsibilities of the researcher and the people involved, including how to manage, communicate and document these. Guidance on facilitating a PPI activity is also provided.
The next session is on Wednesday, 17 October 2018 (10:00-12:30), Room G65A/B, Ground Floor, St Mary's Campus, School of Medicine, Norfolk Place, London W2 1PG. Please register through Eventbrite.
Session 3: PPI Early in the Research Cycle
Aimed at those with a basic knowledge of PPI and who have completed 'Session 1: PPI - The Basics'. Covers PPI in the first three stages of the research cycle: Identifying and Prioritising, Designing and Managing and Funding and Commissioning, together with ways to involve people.
This session is yet to be scheduled. Please check back again.
Session 4: PPI for Participant Information Documents and Recruitment
Aimed at those who have completed 'Session 1: PPI - The Basics' and ideally 'Session 2: PPI Early in the Research Cycle'. Covers PPI in the review of documentation for clinical trial participants and recruitment of participants for trials.
The next session is on 31st October 2018 (10:00-12:30), Imperial College Clinical Trials Unit, Stadium House, 68 Wood Lane, London, W12 7RH. Please register with Eventbrite.
Session 5: Completing the Research Cycle with PPI
Aimed at those who have already completed 'Session 1: PPI - The Basics' and ideally 'Session 2: PPI Early in the Research Cycle'. Covers PPI in the following three stages of the research cycle: Undertaking and Analysing, Disseminating and Implementing.
This session is on 20th November 2018 (14:00-16:30), St Mary's Campus, Room G65A/B, Ground Floor, School of Medicine, Norfolk Place, London W2 1PG. Please register with Eventbrite.
Please note: These sessions have been designed as a series. We therefore recommend that people attend as many as possible. Places will be allocated on a first-come-first-served basis, but priority will be given to researchers and lay partners affiliated to the NIHR Imperial Biomedical Research Centre (BRC), Patient Experience Research Centre (PERC) or Imperial Clinical Trials Unit (ICTU).
If you have any other enquiries or need more information about these training sessions, please contact PERC at email@example.com.
Co-CReating Innovation Solutions for Health (CRISH) is an original, free, two-day course that brings together key healthcare stakeholders, including patients and informal carergivers, to learn to engage, co-create and co-design bench-to-bedside research projects and innovative healthcare projects. The course is delivered by EIT (European Institute of innovation & Technology) Health, of which Imperial College is a partner.
Attendees gain knowledge and skills on patient experience, responsible research and innovation, translational medicine, entrepreneurship, reciprocity and co-design. For more insight on the course content, see the example agenda developed for the 2017 course.
For enquiries, email Maria Piggin (firstname.lastname@example.org) from the PERC team.
Other training resources
Other training resources
Other websites for PPI support
- NIHR INVOLVE – Etablished in 1996, this government funded programme is considered the central portal for PPI expertise, insight and research. It's part of, and funded by, the National Institute for Health Research (NIHR), to support active public involvement in NHS, public health and social care research. Visit their site for the latest insight on PPI in research
- The Health Research Authority (HRA) – In its role to protect and promote the interests of patients and the public in health, the HRA now manages the research and ethics approval process for the NHS in England – for a quick itroduction, watch this HRA Approval animation. Public involvement is therefore central to their work and the approval process, and they have provided useful guidance and templates specific to this on their website
- EUPATI – The European Patients' Academy (EUPATI) is a pan-European project established as a collaborative partnership between the pharmaceutical industry, acadeia, not-for-profit, and patient organisations. They focus on education and training to increase the capacity and capability of patients to understand and contribute to medical research and development
- Public Involvement Standards Development – A UK-wide partnership project that aims to improve the quality and consistency of public involvement in research through the development and introduction of national standards. A consultation was carried out in 2017, and from April 2018 to April 2019, work will be underway to pilot how the developed standards can be put into practice
- Imperial College London – Patient and public involvement is central to a number of departments at Imperial. Many of these have their own PPI sites, with additional information tailored to the research field:
1. Patient Safety Translational Research Centre
2. Imperial Clinical Trials Unit
3. NIHR Health Protection Research Unit in Modelling Methodology
4. NIHR Health Protection Research Unit in Respiratory Infections
In addition, Imperial are dedicated to , which looks more generally at how we share the wonder and importance of what we do here at Imperial with the public - including schools, patients and local communities.
- Voice – Voice is an organisation that aims to capture the publics' vast experience, ideas, opinions and expectations about the research, innovations and policies affecting their lives. They support members of the public, of all ages and backgrounds, to become actively involved in contributing their insights and visions. Through this platform researchers are able to engage in discussions with members, as well as post opportunities for involvement in their research
Other PPI training and resources for researchers and lay members
- The Collaboration for Leadership in Applied Health Research and Care (North West London) (CLAHRC NWL) offers eLearning modules to aide quality improvements. It’s primarily aimed at lay people, however one module entitled ‘Patient and Public Engagement/Involvement’ may be of interest. [N.B. email registration needed]
- The Cancer Research UK PPI toolkit is a free access resource for researchers to learn about, plan and carry out PPI during their research. [N.B. their website provides log-in details]
- The EUPATI Toolbox on Medicines R&D – The European Patients' Academy for Therapeutic Innovation (EUPATI) has devised a toolbox (including training aids, template PowerPoint slides and cases studies) for training patients and patient advocates about the medicine research and development process. Material from the EUPATI toolbox can shared and adapted for free due to its Creative Commons Licence, CC BY-NC-SA 4.0.
Search the Toolbox by keyword or by category. There are a number of mini-course starter kits such as the one on protocol design within Clinical Development and Trials. Alternatively, you can just search 'mini-course starter kits' in the keyword seach function. As a note, some aspects are more geared towards commercial research, but many of concepts and processes are also common to publicly-funded research.
- The ECRAN Project - The European Communication on Research Awareness Needs website provides many tools and resources that can be used to introduce lay members to medical research. For example, here's a short animation introducing clinical research
Downloadable PPI guides for researchers
- Draft Guidance on Co-Producing Research, 2017 (pdf) produced by NIHR INVOLVE
- Briefing notes for researchers: public involvement in NHS, public health and social care research (pdf) produced by NIHR INVOLVE
- A Researchers Guide to PPI (pdf) produced by University of Oxford
- PPI booklet for researchers (pdf) produced by Parkinson’s UK
- PPI in Health and Social Care Research: A Handbook for Researchers (pdf) produced by Research Design Service London
- Frequently Asked PPI Questions (pdf) produced by Sheffield Teaching Hospitals
Plain English PPI glossaries
- INVOLVE’s plain English ‘jargon buster’ of research terminology
- EUPATI glossary (available as PDF)
- Keele University ‘Glossary for Patient/Public Research Partners’ (downloadable)
- Imperial College online glossary of terms relating to research governance, and health and social care research
- Imperial College Healthcare NHS Trust research glossary
Related online training
- As a member of Imperial, you have unlimited access to lynda.com, which offers a wide variety of courses. Consider ones on Marketing Communication or Social Media, which are both very applicable to PPI.
- The short MOOC (massive open online course) 'Citizen Involvement Matters' on Voice North is designed to help academics, students and researchers to identify and focus on citizens' needs and priorities for healthy ageing. It's been funded by Voice, EIT Health and Wellcome Trust.
- FutureLearn provides free online learning to all, which often includes courses hugely relevant to research, public engagement and involvement and the wider field of health and well-being. You can sign-up to get notifications, or keep checking the site for the latest courses. When we find something of particular interest, whether for you or for sharing with patients and the public, we’ll post it below:
- Improving Healthcare Through Clinical Research [APPROPRIATE FOR LAY MEMBERS] - Through case studies and interviews, this online course covers the process of clinical research, its challenges and benefits, and how members of a research team, academics and participants all contribute to the process of discovery.