James Lind Alliance
We have set up a Priority Setting Partnership (PSP) with the James Lind Alliance to prioritise research into safe care for adults with complex health needs. We define adults with complex health needs as those who have more than one illness/disease/condition/disability or those who need care in more than one setting. For example, these people might have both diabetes and depression and/or need care from some of these different services: primary care (e.g. GPs), secondary care (e.g. hospitals), community health services, mental health services, or social care (e.g. care at home or in a care/nursing home).
Using an online and paper survey, we asked patients, carers, the public and healthcare staff for their concerns and questions they would like to see answered about safe care for adults with complex health needs. We had 441 responses to the survey, mostly online, which we are currently analysing.
The next stage of this project will be for patients, carers, the public and healthcare staff to tell us which are the most important topics suggested in this survey, through another survey, which will be advertise on this website and twitter @Imperial_PSTRC.
The top 10 priorities for research will be agreed at a workshop in late 2018. The PSTRC will carry out research in some of these areas and publicise the results so that others can do research in these areas. We ultimately want to help make care safer for adults with complex health needs.
The PSP is being led by a Steering Group made up of patients, carers, members of the public, healthcare professionals and people from organisations representing those groups. Please see the documents below for more details.
Anna Lawrence-Jones, email@example.com, 020 7594 3149
If you have any questions or would like to request a paper version of the survey and a freepost envelope to be sent to you, please contact Anna on the email address above or call 020 7594 3149.