We have set up a Priority Setting Partnership (PSP) with the James Lind Alliance to prioritise research into safe care for adults with complex health needs. We define adults with complex health needs as those who have more than one illness/disease/condition/disability or those who need care in more than one setting. For example, these people might have both diabetes and depression and/or need care from some of these different services: primary care (e.g. GPs), secondary care (e.g. hospitals), community health services, mental health services, or social care (e.g. care at home or in a care/nursing home).

Using a survey, we are asking patients, carers, the public and healthcare staff for their concerns and questions they would like to see answered about safe care for adults with complex health needs.

WE WANT TO HEAR YOUR VIEWS! 


PLEASE FILL OUT THE SHORT ANONYMOUS SURVEY BY 16TH FEBRUARY 2018, THROUGH EITHER OF THESE LINKS BELOW:

 

HTTPS://HLXC.UK/SAFER-HEALTHCARE or HTTPS://IMPERIAL.EU.QUALTRICS.COM/JFE/FORM/SV_55VATBYOJCFDSYD

Or download the paper version of the survey and scan it or post it.

Scan to: Anna at a.lawrence-jones@imperial.ac.uk

Post to:

Anna Lawrence-Jones
NIHR Imperial PSTRC
Room 503, Medical School Building
Norfolk Place
London
W2 1PG 

If you have any questions or would like to request a paper version of the survey and a freepost envelope to be sent to you, please contact Anna on the email address above or call 020 7594 3149.

The next stage of this project will be for patients, carers, the public and healthcare staff to tell us which are the most important topics suggested in this survey. Then the top 10 priorities for research will be agreed at a meeting in 2018. The PSTRC will carry out research in some of these areas and publicise the results so that others can do research in these areas. We ultimately want to help make care safer for adults with complex health needs.

The PSP is being led by a Steering Group made up of patients, carers, members of the public, healthcare professionals and people from organisations representing those groups. Please see the Terms of Reference below for more details and the below protocol for more information about this project.

The draft protocol can be viewed here: Protocol Safe Care of Adults with Complex Health Needs v4 - August 2017

Terms of reference for the Steering Group can be viewed here: Steering Groups Terms of Reference v3

A printable poster for the survey can be found here, if you would like to promote the survey: Safe care poster