Some health apps that have been clinically-accredited may not have been complying with principles of data protection, according to new research.
The research, published in the open access journal BMC Medicine, found that in some instances health apps were sending unencrypted personal and health information, which means users of these apps may have had their privacy put at risk.
Our study suggests that the privacy of users of accredited apps may have been unnecessarily put at risk, and challenges claims of trustworthiness offered by the current national accreditation scheme being run through the NHS.
– Kit Huckvale
Use of smartphone health apps is now at an all-time high. It is currently estimated that one and a half billion smartphone users have a health app installed and this number is set to treble in the next three years. One quarter of US adults have reported using one or more health apps and a third of physicians have recommended an app to a patient.
As a way of reassuring users about the quality and safety of health apps, several app accreditation programs have been launched. One such program is the UK’s NHS Health Apps Library, which is a curated list of apps for patient and public use. Registered apps undergo an appraisal process that examines clinical safety and compliance with data protection law. To be listed in the Health Apps Library, developers are required to declare any data transmissions and register with the UK’s Information Commissioner’s Office – the body that enforces the Data Protection Act.
Lead researcher Kit Huckvale, from Imperial College London, said: “Our study suggests that the privacy of users of accredited apps may have been unnecessarily put at risk, and challenges claims of trustworthiness offered by the current national accreditation scheme being run through the NHS. The results of the study provide an opportunity for action to address these concerns, and minimize the risk of a future privacy breach. To help with this, we have already supplied our findings and data to the NHS Health Apps Library.”
The researchers from Imperial College London, UK, and Ecole Polytechnique CNRS, France, reviewed 79 apps that were listed on the UK NHS Health Apps Library in July 2013 and are available on Android and iOS platforms. The apps covered health areas such as weight loss, alcohol harm reduction, smoking cessation and long-term condition self-care.
Kit Huckvale said: “It is known that apps available through general marketplaces had poor and variable privacy practices, for example, failing to disclose personal data collected and sent to a third party. However, it was assumed that accredited apps – those that had been badged as trustworthy by organizational programs such as the UK’s NHS Health Apps Library – would be free of such issues.”
Paul Wicks from PatientsLikeMe -a health information sharing website for patients has written an accompanying commentary, and said: “A proper balance must be struck between innovation and caution, patient safety must be paramount. The potential for benefit remains vast and the degree of innovation is inspiring - but it turns out we are much earlier in the maturation phase of medical apps than many of us would have liked to believe. To build the future we want, in which patients can trust their medical apps, we need to verify that they function as intended.”
Reference: "Unaddressed privacy risks in accredited health and wellness apps: a cross-sectional systematic assessment" BMC Medicine, 25 September 2015, Kit Huckvale, José Tomás Prieto, Myra Tilney, Pierre-Jean Benghozi and Josip Car
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Photos and graphics subject to third party copyright used with permission or © Imperial College London.
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