In this section
@article{Davies:2026:10.1002/ppul.71720,
author = {Davies, JC and Bakkeheim, E and Chansard, A and Drevinek, P and Dubois, C and Matthews, J and Sheremet, M and Smith, C},
doi = {10.1002/ppul.71720},
journal = {Pediatr Pulmonol},
title = {Perspective of the European Cystic Fibrosis Society on Improving Global Cystic Fibrosis Care.},
url = {http://dx.doi.org/10.1002/ppul.71720},
volume = {61},
year = {2026}
}
TY - JOUR
AB - INTRODUCTION: Outcomes for people with the inherited disease, cystic fibrosis, have improved greatly over the last few decades, but one result of this is a widening gap between regions with high income and well-resourced healthcare systems and low/middle income countries. The gap stretches from newborn screening programs, provision of standard diagnostics and genetic testing through to access to standard of care therapies. METHODS AND RESULTS: This paper describes the various initiatives of the European Cystic Fibrosis Society: our Patient Registry, a Twinning Program linking centers from different regions and our Educational Program. CONCLUSIONS: The European Cystic Fibrosis Society recognizes this as a major issue and seeks through these programs to support colleagues, patients and families in low/middle income countries.
AU - Davies,JC
AU - Bakkeheim,E
AU - Chansard,A
AU - Drevinek,P
AU - Dubois,C
AU - Matthews,J
AU - Sheremet,M
AU - Smith,C
DO - 10.1002/ppul.71720
PY - 2026///
TI - Perspective of the European Cystic Fibrosis Society on Improving Global Cystic Fibrosis Care.
T2 - Pediatr Pulmonol
UR - http://dx.doi.org/10.1002/ppul.71720
UR - https://www.ncbi.nlm.nih.gov/pubmed/42400501
VL - 61
ER -
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