Public Involvement Insight Reports

To inform the NIHR Imperial Biomedical Research Centre (BRC) reapplication for 2022 to 2027 the Patient Experience Research Centre undertook a programme of public involvement activity from November 2020 to September 2021

The public involvement activity included online discussion sessions, online surveys and specific activities with community members. The purpose of each of the activities was to enhance our existing public involvement and to support the development of new and existing research Themes for the BRC reapplication. The insight reports for each of the public involvement activities which summarise the activities and outputs are provided below.

Online Discussions

This activity included a series of online sesssions via Zoom with members of the public with varying lived experience. Sessions were co-hosted with Theme researchers and included an introduction to the topic being discussed, anonymous polls, Q&A and smaller group discussions via 2 - 3 breakout rooms for attendees to share views on each topic.

Public Involvement Discussions

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Building our Digital Health Programme in North West London

Read the summary report from our Zoom call on 07 July 2021 with members of the public about their views on how digital health could improve clinical care, the health of the community and research.

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Real World Evidence Studies to Improve Health and Care

Read the summary report from our Zoom call on 21 July 2021 with members of the public about their views on using routinely collected health data (i.e. real world evidence) for research.

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Using Artificial Intelligence to Improve Health and Care

Read the summary report from our Zoom call on 4 August 2021 with members of the public about their views on the use of artificial intelligence to improve clinical care.

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Use of the Wynn Database for Metabolic Research

Read the summary report from our Zoom call on 29 July 2021 with members of the public with lived experience of metabolic disease (e.g. diabetes) about their views on the use of historic database.

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Social, Genetic and Environmental Determinants of Health

Read the summary report from our Zoom call on 1 Sept 2021 with members of the public about their views on research relating to social, genetic and environmental determinants of health.

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Weight and Fertility

Read the summary report from our Zoom call on 2 Sept 2021 with members of the public about their views on weight and fertility research and service provision.

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Public Involvement Discussions

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Non-Alcoholic Fatty Liver Disease Research

Read the summary report from our Zoom call on 6 Sept 2021 with members of the public with lived experience of Non-Alcoholic Fatty Liver Disease (NAFLD) about their views on NAFLD research.

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Molecular Phenomics

Molecular Phenomics

Read the summary report from our Zoom call on 14 Sept 2021 with members of the public about their views on the application of molecular phenomics in clinical care, community health and personalised medicine.

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Online surveys

A series of online public involvement surveys were undertaken to gain input into Theme's development and research areas from a wider and more diverse audience.

Public Involvement Online Surveys

Respiratory

Respiratory Medicine Online Public Survey

We launched an online survey throughout July - August 2021 to understand areas of respiratory medicine which were are most important to the North West London Community.

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Molecular Phenomics

Molecular Phenomics

We launched an online survey throughout August - September 2021 to assist with the development of the Molecular Phenomics Theme and its programme of work aiming to improve diagnostic testing. The survey explore public experiences of missed, late or incorrect medical diagnoses.

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Child health

Involving children, young people and families in our research

We launched an online survey throughout August - September 2021 to understand the views of parents and families in North West London regarding paediatric and child health.

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BRC Public Advisory Panel Discussions

A series of online discussion sessions via zoom with the Imperial BRC Public Advisory Panel (Panel). Sessions were co-hosted with Theme researchers and included an introduction to the topic for discussion, Q&A,  and smaller group discussion via breakout rooms for panel to provide strategic on development of research Themes

BRC Public Advisory Panel Discussions

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Involving children, young people and families in our research

Members of the Panel joined a Zoom call on 8 April 2021 to share their views on involving children, young people and families in Imperial BRC research.

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Brain Sciences

Members of the Panel joined a Zoom call on 21 January 2021 to inform the development of the Brain Sciences Theme as part of the Imperial Biomedical Research Centre (BRC) (2022 to 2027).

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Multiple Long-Term Conditions

Members of the Panel joined a Zoom call on 8 September 2021 to inform the development of the Multiple Long-Term Conditions Theme as part of the Imperial Biomedical Research Centre (BRC) (2022 to 2027).

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Respiratory Medicine

Members of the Panel joined a Zoom call on 8 April 2021 to inform the development of the Respiratory Medicine Theme as part of the Imperial Biomedical Research Centre (BRC) (2022 to 2027).

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Cardiovascular

Members of the Panel joined a Zoom call on 8 March 2021 to inform the development of the Cardiovascular Theme as part of the Imperial Biomedical Research Centre (BRC) (2022 to 2027.

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Digestive Diseases

Members of the Panel joined a Zoom call on 8 March 2021 to inform the development of the Digestive Diseases Theme as part of the Imperial Biomedical Research Centre (BRC) (2022 to 2027).

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Metabolic Medicine and Endocrinology

Members of the Panel joined a Zoom call on 21 January 2021 to inform the development of the Metabolic Medicine and Endocrinology Theme as part of the Imperial Biomedical Research Centre (BRC) (2022 to 2027).

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Digital Health: Using AI to improve patient care

Members of the Panel joined a Zoom call on 16 February 2021 to provide their views on the use of Artificial Intelligence(AI)within Electronic Patient Records to improve patient care. The discussion was used to inform the development of the Digital Health Theme as part of the Imperial Biomedical Research Centre (BRC) (2022 to 2027).

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Using AI to interpret liver biopsies in NAFLD

Members of the Panel joined an online meeting on 21 January 2021, to discuss the research project 'Interpreting liver biopsies from patients with Non-Alcoholic Fatty Liver Disease (NAFLD) using Artificial Intelligence (AI)'.

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