The Neonatal Data Analysis Unit (NDAU) forms part of the Neonatal Medicine Research Group at Imperial College London led by Professor Neena Modi at the Chelsea and Westminster campus of Imperial College London. The NDAU was founded to support the management and development of the National Neonatal Research Database (NNRD) established in 2007. It is staffed by a team of analysts and data scientists led by senior analyst, Kayleigh Ougham. Programme support is provided by Dr Ricardo Ribas.
The NNRD is a multipurpose national resource holding real-world clinical data on admissions to NHS neonatal units in England, Wales, Scotland and the Isle of Man. Neonatal units submit data through their Electronic Patient Record system supplier. Neonatal Units contributing to the NNRD are known as the UK Neonatal Collaborative (UKNC). Each neonatal unit has a UKNC lead who acts as the point of contact with the Neonatal Data Analysis Unit. You can find the list of UKNC leads on the UK Neonatal Collaborative page.
At present, there is information on over 1.6 million babies and 19 million days of care in the NNRD. The NNRD is available to support audit, evaluations, bench-marking, quality improvement and clinical, epidemiological, health services and policy research to improve patient care. You can find examples of NNRD outputs on the HDR-UK Gateway website and can explore the data on the NNRD data visualisation page.
Data in the NNRD comprise the Neonatal Data Set DAPB1595, an approved NHS Information Standard, and include demographic details, daily records of interventions and treatments throughout the neonatal inpatient stay, information on diagnoses and outcomes, and follow-up health status at age two years. You can view the list of variables held in the NNRD on the Neonatal Data Set (Dictionary) page. Details of how to access the NNRD are provided on the Utilising the NNRD page.
Acronyms can be confusing and we are often asked about the NNRD and NNAP; NNAP stands for the National Neonatal Audit Programme. The NNAP is based at the Royal College of Paediatrics and Health and is commissioned by the Healthcare Quality Improvement Partnership (HQIP). HQIP is an independent charity that manages clinical audits on behalf of the NHS. Information for the NNAP are obtained from Electronic Patient Record systems as a single purpose data flow.
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